Once again Nonee provided much comfort today. They started and finished an entire chapter book by 3PM. I headed out for the long walk (11 blocks) to a grocery store to try to find foods to tempt Christi. She is eating small amounts of soft foods, but that’s about it. Tomorrow I’ll try to get her on a scale to see how much she’s lost.
Sometimes I think she’s improving and other times I don’t. Today has been the first day we’ve been able to have the lights on and to even open the curtains. (My camera pics going on the blog should be improved now.) The pain meds have been increased to every three hours now instead of every four. She had been irritable about an hour before it was due and with this more frequent dosing she’s now back to her sweet, charming self shortly after receiving the dilaudid.
After asking CHOP’s Child Life to borrow their board game “Clue Jr.” for two days, Christi told me, “There are a lot of kids here and they can forget. You need to be persistent and keep asking them.” Since it was the only game she really wanted to play and she had been feeling lousy, I was on a mission! In desperation late last night, I emailed Liz Scott to see if she could tell me a store within walking distance where I could purchase one. Thankfully, she said Christi could have theirs and she kindly offered to drop it off this morning since she would be close by anyway. I met her in her van at 8:15 this morning and we were playing Clue Jr. by 9:30AM! THANK YOU, Liz!
Blood Counts have shown that she has a wee bit of an ANC! Praise God!!!! 1.0 white, 10.0 hgb., platelets 64 with an ANC of……….120!!! (Still a long way to go, but it looks like things are on the upswing now!) Mom and I are looking at flights to get us back to our home states. We’ll probably book something soon and then hope it actually works out! (Most likely Christi and I will only be home for about six days before returning to CHOP to receive another high dose round of chemo, but without a doubt “Buckeye” will get a lot of spoiling during that time!)