Back in School
What joy for all three of us to be back in school together today!! Christi wore her hat with hair attached; however, I learned she took it off and on throughout the day. She immediately told me after school that one kid made fun of her at recess for being bald, but then she giggled and said, "Only one! There are a lot of kids on the playground." (Not too bad, I guess!)
She continues to feel very well and we're grateful for that. I'm also grateful that Dr. Maris decided to "tank up her platelets" before we left so that we don't even need to have her blood counts checked this week. Ahhhh!
Tonight I just paid for our return plane tickets (Tuesday, after school, March 21st).
My conversation with Dr. Maris yesterday was the shortest ever. He told me it was a dramatic response. Of course, I was thrilled - but started to pick out little things I noticed until he soon said, "90% of the stuff is gone," which hushed me immediately! I thought the MIBG scan looked much improved; however, I did point out a new spot. (I think on her liver.) Dr. Maris left to check the scan again and came back and told me it's too low to be the liver or adreanal gland, or a rib but it is lighting up in one bright spot. Therefore, they'll do a full abdomen CT scan and find out where it is and if it is neuroblastoma before starting the chemo. (Nurse Practitioner Pat Brophy called me tonight to tell me it's set for 8:30 AM on Wednesday, March 22nd.)
We celebrate this tremendous news; yet, we know it's a long way from gone. Spots remain in her: skull, ribs and legs. We also know how things can change on a dime; however, for now we celebrate!! Dr. Maris's plan is to do two more very hard rounds of high dose chemo (TVD starting March 22nd) and then to switch to a clinical trial for minimial residual disease if she continues to respond. We hope to get her there with two more rounds of chemo; yet, we fully realize that she's had great intial
responses in the past; they just don't last.
Thanks for lifting her up in prayer! We've been richly blessed!
posted by the Thomas team @ 8:06 PM
17 Comments:
What great news! Lets get working on that last 10%!! Miracles CAN happen!! She looks soo happy with her class!
Love & Prayers,
Jennifer
Wow 90% of the cancer is gone . Praise the Lord . We will continue to pray for good health and good news . Hugs and kisses are going your way .
uppersandusky , Ohio
Wow your cancer is 90% gone . PRAISE THE LORD!!!!
I will continue to pray for good health and great news.
Jackie UpperSAndusky , Ohio
Christi, just remember, God only made a few perfect heads, the rest He covered with hair. You have the cutest head of all! xoxoxo
HAPPY ST. PATRICK'S DAY!
love, sylvia
I'm so glad you're home safely and Christi was up to going to school. I rejoice in the fact that the chemo she just finished wiped out more than just her counts. I so wish there was nothing new to report, but I know this still represents progress from a few weeks ago. I love you all dearly, and we continue to pray here for complete healing. I will go and update my prayer chain right now.
Hugs,
Spring
Talk about living in the moment. You guys are amazing! From Hospital bed, to Airplane to School in the the span of a day. Go Team Christi!
Holding the hope - and it's burning brightly like the olympic torch.
Sending you all (((((((((((((((((((hugs))))))))))))))) and doing the celebration happy dance!
Eliza
Back at school- now those are three wonderful words for three wonderful gals! :)
Christi- LOVE your hat with the hair- you look great- but then again you always look just beautiful to me. Inside and OUT!!!
I'm so glad to read that Christi has had a such a dramatic response to this chemo, great news. I of course will continue to pray,pray, pray for her. She's forever my hero, my hope and my inspiration!
Love you all!!
Love and tons of prayers,
Heather
Missed checking the last couple days. So very glad ya'll made it home safe. Christi looks so happy to be back in school. I can only imagine how thrilled you all are to be home again.
God is good. Still praying daily that this healing continues unabated.
Today is a very good day. Keep the faith.
Greg
Great to see Little Christie back in school - I hope she has many happy days. Prayers to you all.
HAPPY ST. PATRICK'S DAY!!!
Have a great day in school and at home!
So happy for all of you that you are home sweet home.
HUGS to you all!
Love and prayers forever and always,
Heather
hey there!
my email is danielle.marie.w@earthlink.net
i would love it if you would email me so i could write you on an idea my fiance and i have for our wedding this june to benefit christi - but i want your opinion and your family's blessing first!!
I hope to hear from you :o)
i am so happy that all of you are doing great -
all my love and prayers,
danielle
Christi being able to be surrounded by her family and friends is just what the doctor ordered. The prayers will be storming the heavens to help her get through the next few rounds of chemo on her way to a continued response. I hope you have a relaxing, fun-filled weekend!
Hey Christi, you are incredible, kicking cancers butt and wanting to go to school too, you are in my thoughts and prayers. I bet Buckeye was glad to see you as was Dad and dear Shayla. I send you a huge HUG and may god keep shining good fortune upon you my love, you are my hero Christi, take care and enjoy being home sweetie you deserve it.
Lv Ya! susan
I love how all of Christi's friends wear hats!! And I just love Christi's hair hat too cute!! God bless and have a happy st. patricks day!
Hello!
How wonderful to see a photo of Christi and her beautiful smile with classmates at school. Hooray!
Enjoy your family time together. you all deserve it sooooooo much.
Bless you all!
Cheryl Scott
Check this out!!
http://i16.photobucket.com/albums/b6/keepxhopex4xever/color.gif
Hi Thomas team!
SO glad you made it home safely.
Christi...have fun playing with Shayla and enjoy school and your friends and hug, hug, hug those kitties!
Angela...renew and refresh your spirit with your family and friends.
Shayla and Shane...enjoy every minute you all have together!
Prayers go up...
Blessings come down & Miracles DO happen!!
God is good. Praying this next round of chemo kicks butt(and cancer)!!!
Sending prayers and lots of love!
Jan
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