Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

A Note About Comments: When you post a Comment, please note that it will appear online after it is approved.

Wednesday, March 01, 2006

Chemo, Ashes & Science



A nearly identical experience as yesterday- morning nausea followed by Zofran to help calm it followed by a smooth day of chemo at CHOP’s day hospital. Dr. Maris stopped by and said that it was obvious that she responded to the chemo; however, he wants to scan before the third round. “Just because she looks great on the outside doesn’t mean internally things have also improved.” I’m confident they have, but it’ll be nice to get a clear picture (well as clear as an MIBG scan gave provide) on Friday, March 16th. It is of his current line of thinking to hit her with more chemo beginning March 20th. He’s particularly eyeing the harsh carbo/VP-16 chemos next, but we’ll need to watch her platelets and hope that she can continue to make them on her own. (The etoposide is very hard on platelets.)

He believes we picked a good day to return to Philly as she should soon start to go downhill and her nadir should hit around the 8th of March. (The day we fly back here.) Her ANC will go to zero, but she shouldn’t have the mouth sore problems which result in the inability to eat to the severity she did last round as they’ve cut the dosage by 50 percent. Without a fever, she’ll escape a lengthy hospitalization so we are praying for that and we know she'll need transfusions again. (She does so much better when she’s living in this loving and wonderful Ronald McDonald House and not hospitalized.)

I did express to him that Christi wanted to talk with him about the “dreaded G shots” like she inquired about with me this morning, but she was too shy and wouldn’t share her feelings with him when the time came- so I did. I asked if I could bring her to the day hospital each day to get her “G” through her port instead of having to get a shot since we’d be living just down the street. He said he was thinking of something and he’d get back with us.

Soon he returned and told with me that Neulasta will do the same thing and it's only one injection (as opposed to the 14 doses she received last month). I shared with him that I thought that was only for older patients and he said they’ve run the clinical trials and that is about to change. Currently, it’s only given to patients who are above 40 kilos. (Christi’s currently 30 kilos.) It is given 24 hours post chemo. (Shayne will give it to her Saturday afternoon.) He told me that it is very expensive ($4,000) and he knows that our insurance company hasn't been the best about paying what they should, but that's out of his control. What he can tell me is that it is safe and it is effective. I agreed that we wanted to do it. He told me that I'll just need to sign a paper saying that it's not for pediatrics, but that I want Christi to have it anyway. Let's just say Christi was incredibly happy to learn that there would only be one shot.

After her chemos were done dripping, a Sister came by and gave us our ashes for Holy Ash Wednesday. Then we were off to the Franklin Institute. Christi asked me if it was Phildelphia's COSI. I told her yes, but once we were there we soon learned that COSI really puts it to shame. We did have a wonderful time and the museum is really special, just not the country's best like we're spoiled by. Christi continues to feel very well right now - of course like I told Shayne today, "With Traci and Jenn catering to every need and whim, how could she not be feeling well?!!"

Tonight brought "Vets' Pes" at Ronald and Christi really enjoyed the two doggies - (OK, Traci and Jenn did too.) Tomorrow should be a repeat of today- chemo and an excursion. God is good!

5 Comments:

At 2/3/06 10:23 AM, Blogger California Friend said...

Wow Guys...have to admit you had us a little nervous with no update til today! SO glad you were off having fun, but sorry that the Franklin Institute wasn't up to COSI standards!

I'm sure you're SO looking forward to heading home after this bout & know that the homefront is equally looking forward to it & counting the minutes!!

YAY to Dr. Maris on the "one shot" front and also to Traci & Jenn, those 2 Guardian Angels here on earth!!

Love & hugs from CA,
Pat

 
At 2/3/06 10:34 AM, Blogger HeatherB said...

I'm so glad that Christi is continuing to feel so well! What a sweetheart. :)

YIPEE that the Nuelast(sp?) will do the same thing with fewer shots, which is a good thing for Christi and for you and Shayne too I'm sure.

I'm glad Traci and Jenn have been such awesome supports for you- THANK YOU ladies for giving such loving support to Christi and Angela- you're AWESOME!!

I'll be praying that her platlets will continue to be made on their own and that she will indeed avoid fever and hospitilaztion!

Love you guys soooo much.

Lots of love, tons of prayers,
Heather

 
At 2/3/06 11:29 AM, Anonymous Anonymous said...

That is so great that she is responding to the chemo and she is feeling so well. I will pray for her to continue feeling good and for her not to have to be hospitalized.

Sarah

 
At 2/3/06 1:54 PM, Anonymous Laura Lynn said...

Hi Christi!

It is wonderful to hear you are doing so well. I hope your excursion today was enjoyable and that you continue to feel well. You are in my prayers always as is all of your family!

 
At 2/3/06 4:15 PM, Blogger Angela said...

Dear Angela,

Glad to hear that Christi is still feeling good, it's great that she can have fun with your relatives keeping her company! And how nice that she will only have one shot!

I hope she will continue to feel well and have some fun. I hope that you are able to profit from having relatives there Angela and get yourself some rest, I'm sure you really do need some, take care of yourself too!
Lots of love
Angela

 

Post a Comment

Links to this post:

Create a Link

<< Home