“I just want to clean the bathroom!”
OK, it’s funny now, but an hour ago that is what I called and sobbed to Shayne. You see I was in the midst of cleaning when Dr. Maris called and told me we were going with his plan and not mine. I really thought he’d agree to our plan: five days of low dose topo/cytox after school in our own home so I could work and she could remain at home. He said, “For this last round of chemo, we should mix it up a bit and give her something she hasn’t had before. She needs to be here on Wednesday.” UGH!!!!!!!
So instead of cleaning, I hit the computer to try to find the cheapest way to Philly and I started pulling out suitcases. Christi will go to Ohio State with me and attend my class on Tuesday night (If it’s okay with my Professor. Hey – with Christi maybe she’ll teach my class!! Smile.) and then we’ll fly out of Columbus at 6:00 AM on Wednesday. (Shayne’s birthday. Christi already has his present.) After this round we’ll do a full evaluation and see if we can switch her over to a clinical trial. (That has been our prayer during this Holy Season.)
So when I called Shayne back to get his credit card number to book our flights, I wasn’t exactly stating that I just wanted to scrub the shower anymore, but………I’m off! Here’s wishing you a good day! (Christi has been told she's heading back to CHOP. She was hoping and praying with us that she'd be doing chemo after school this coming week, but........so much for the best of plans. She's okay with it. She stated, "I just want to go to school on a Friday!" (She misses her friends!)
posted by the Thomas team @ 9:18 AM
9 Comments:
Though not exactly the plan you had in mind, maybe it is just what Christi needs to help her conquer this beast. Hopefully it will be a quick visit at CHOP and soon you will both find yourselves back in the classroom!
Happy Easter and Hang in there Thomas Team!
It sounds like Dr Maris is going for a Belt and Braces approach...not sure if that phrase translates from English to English :) but basically I mean Dr Maris seems to feel the need to hit this hard and only hard. I'm so sorry things haven't worked out for your plan. I guess Little C is on a count down for her birthday, I'm adding 'home for birthday' to my prayer list! Love to yo all.
Dear Angela,
So sorry that you have to go back to CHOP already, but Dr Maris knows best! He just wants to do the best he can for Christi for sure, I guess he would much rather let you stay home if possible!! I know, it is really hard and frustrating for you, wish it could be different.
Hopefully after the next treatment you will get home again for a while and I pray that she can start the clinical trial as you want her to and that it will be successful.
I love the picture of Christi with Buckeye and her slippers!!! Pity it's not very clear, but I could see a great smile, I have said it before I know, I really do believe in animal therapy, it makes me feel calm and good when I pet one of our cats, they respond to you and it is nice to feel that you are communicating with them. I often think cats really understand, it is wierd, but when my cat is sitting on me in the evening, if I say I'm going to get up in a minute and tell her she is going to have to get down, she does more often than not before I move!
Take care, good luck, prayers for Christi
Lots of love
Angela
Well darn it!! I was praying that your plans would be accepted too. I didn't know your plans for certain,but I had my ideas that they would include at home chemo.
I'm praying HARD that this next round of chemo will allow her to swtich to a clinical trial.
With all my love and many prayers,
Heather
My family is leaving at 6 am Saturday April 15 for Phili if you want to catch a ride with us. I know you'd be giving up Easter at home but it would save a plane ride. You are welcome if interested. Just call 419-443-0393 Lorie
As I sit here this evening on Good Friday, all I can think about are the words Shayla spoke upon Christi's disease progression. "Easter is about HOPE and Easter is coming!" You all are never far from my heart, mind, or prayers. I hope Shayla is right, and that this year Easter will bring you a miracle. But then I realize that, while you haven't gotten the ultimate miracle of Christi's complete and total healing, you have been given lots of extra precious time with your little miracle.Here's to hoping for at least 100 more years of "extra" time with her.
I'm so sorry your plans didn't go over well with Dr. Maris & you'll be heading back to CHOP! Guess we'll have to go on faith though... that man hasn't steered us wrong yet! (Note the "us"- Christi REALLY has become everyone's child!! Thanks to her generous family for sharing her!
Love & hugs from CA,
Pat
Greetings Thomas Team!
From that title I thought it was going to be a story involving Shayla.
I'm sorry to hear you can't have life back to "normal" with chemo at home, but doctor knows best. If she qualifies for any clinical trials maybe there's hope for her to have more time at home (and your wallets not being stretched financially for all those plane tickets, yikes). I was also praying today that she would have her birthday at home.
Until then I will rejoice that this Easter you will be home, together as a family as well as with your church family for this most special holiday. I know Shayne is working so hard so I hope you all get some time laying around the house and eating chocolate bunnies. I'm still adjusting to Orthodox Easter, have to wait another week to eat my marshmallow peeps :)
I hope you can take comfort in the fact that I've been thinking of you guys often. When I was in the ER for my broken ankle I remember thinking "I can't believe they have endured this for three and half years, three and half hours made me go nuts".
So I will leave you for tonight before this "comment" gets any longer.
Love, Anna (still trapped indoors on crutches and battling infection)
I'm sorry to hear you have to return to CHOP earlier than you expected, that must be hard on the whole family. :( You all are of course, in my thoughts and prayers. I really enjoy following Christi's story. It's very inspring! I also wanted to inquire on who created the "support for christi thomas myspace." (http://myspace.com/christithomas)
Love, Liz :)
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